In a group I belong to for people who have suffered from Persistent Post Concussion Syndrome (PPCS, a form of TBI), there was a question from a member about whether we have a hard time listening to new music. Almost all of us in the group said yes - our brains no longer process the cacophony of new ...
A blog about my personal experience with traumatic brain injury (TBI). I am recovering over 2.5 years after the accident and want to give hope to those who have been dealt a similar path by life.
Having phonophobia – I couldn’t stand everyday sounds (and the process of accepting the new self)
I sometimes feel over-stimulated - it can be emotionally, visually, intellectually and/or auditorily. The latter is one of the most frustrating symptoms. It's called phonophobia or hyperacusis At first, I couldn't hear or participate in a conversation longer than 30 seconds. After a conversation ...
Driving a car with TBI
If you have been affected by post-concussion syndrome, it is possible to drive again. It takes determination, help from others, and patience. 💪🏽🧠🌿 I can drive now (1-2 hours/day). I couldn't before. I believe, and my doctors believe, that I will continue to improve to the point where I c ...
There are days when I feel very small
Today marks 2 years and 9 months since I injured my brain. I am doing much better. I walk well, run a little, cook, listen to music (easy), drive for 25 minutes at a time. I also use screens for several hours if necessary, eat almost everything - except lactose and gluten, participate in intense ...
‘Non-medical’ interventions to facilitate recovery
First of all, I want to make it VERY clear that recovery is not something that can be rushed. Every time I try to push myself to do more, to get better faster, I experience the opposite of what I want - I have a delay in recovery and an increase in symptoms which results in hours or days of frustra ...
Therapies and doctors that have helped me
In this post, I'm going to write about the therapies and doctors that have helped me, with a brief explanation of each experience. I didn't find the best specialists until after a year of trying various therapies and searching for solutions, but without success. Over the past few years I've had sev ...
Recovery: Bad medical advice and some pleasant surprises
I guess every medical event comes with some surprises. Something not going as expected, an undiagnosed complication, financial problems, among others. Based on what I read and my experience, TBI is one of the medical events with the greatest number of possible deviations from the 'normal' and diagn ...
Thank you for visiting. I hope this has helped your or your loved ones.