Yesterday, two specific moments in my day triggered brain injury memories that let me to say, “Do you remember when…?” It felt amazing to be able to phrase some of the persistent trials of my concussion in that sentence structure. Past. Memory. The first moment happened when I was walking upstai ...
A blog about my personal experience with Post-Concussion Syndrome (PCS), a type of traumatic brain injury (TBI). Mine occurred in 2021, and my intention is to give hope and understanding to those who have been dealt a similar path in life.
Vision: A Road of Perseverance
A few days after the fall that caused my concussion/TBI, I was with my sisters at a family gathering. One looked at me and said bluntly, "Why are you staring at me like that?" I could tell that I was having difficulties focusing my gaze, but I didn't know that people would be able to tell. I told h ...
The Year Without Music
In a group I belong to for people who have suffered from Persistent Post Concussion Syndrome (PPCS, a form of TBI), there was a question from a member about whether we have a hard time listening to new music. Almost all of us in the group said yes - our brains no longer process the cacophony of new ...
Having Hyperacusis – I Couldn’t Stand Everyday Sounds (and the process of accepting the new self)
I sometimes feel over-stimulated - it can be emotionally, visually, intellectually and/or auditorily. The latter is one of the most frustrating symptoms. It's called phonophobia or hyperacusis. At first, I couldn't hear or participate in a conversation longer than 30 seconds. After a conversatio ...
Driving a Car With PPCS
If you have been affected by post-concussion syndrome, it is possible to drive again. It takes determination, help from others, and patience. 💪🏽🧠🌿 I can drive now (1-2 hours/day). I couldn't before. I believe, and my doctors believe, that I will continue to improve to the point where I c ...
There Are Days When I Feel Very Small
Today marks 2 years and 9 months since I injured my brain. I am doing much better. I walk well, run a little, cook, listen to music (easy listening only - mostly simple piano compositions), drive for 25 minutes at a time. I also use screens for several hours if necessary, eat almost everything - ...
‘Non-Medical’ Interventions to Facilitate Recovery
First of all, I want to make it VERY clear that recovery is not something that can be rushed. Every time I try to push myself to do more, to get better faster, I experience the opposite of what I want - I have a delay in recovery and an increase in symptoms which result in hours or days of frustrat ...
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